Brutkey

The Chaotic Good 🏳️‍⚧️🏳️‍🌈🖖
@Aminorjourney@lgbtqia.space

Hey, folk who have #invisibledisabilities…. How do you explain to people that you don’t have the same body capabilities/endurance/needs as folk who don’t have the same challenges you do?

I’ve been thinking a lot lately about how to better explain to folk that my body is always operating at reduced capacity because my #donotdie medicine slows my heart rate and thus, while I’m fit and strong, my body tires more easily than it might otherwise do.

I can say “oh, I have #LQTS” but folk don’t really get the implications. I can say “remember that person who died from drinking an energy drink/super caffeinated beverage/too much coffee?” And they get that… but… It doesn’t translate to “I GET FUCKING TIRED EASILY AND SOMETIMES I JUST CAN’T FOR A FEW DAYS BECAUSE THE MEDICINE THE KEEOS ME FROM HAVING A CARDIAC ARREST ALSO GIVES ME SUPER LOW BLOOD PRESSURE AND LOW HEART RATE”

I’ve had some friendships end because people thought I was always bouncing because I didn’t want to hang but the reality was I was just exhausted… and some folk don’t get that I sometimes have to change plans because body…

I can’t be the only one

Thoughts?

The Chaotic Good 🏳️‍⚧️🏳️‍🌈🖖
@Aminorjourney@lgbtqia.space

Given that I've just moved servers from @Tech.lgbt to @Lgbtqia.space, it's time for me to give you another Introduction!

I'm Nikki, an #ExPat Brit (who is half Canadian and now a U.S. Citizen) living just west of #PDX, Portland, OR.

As a #trans and #queer person growing up in the 1980s and 90s, Music became a much-needed escape from the real world, and I ended up attending #GSMD in London and becoming a professional #Oboist and #MusicTeacher.

In 2010 I changed career. I'm the owner and co-presenter of @show@mastodon.transportevolved.com, where we try to help the world become cleaner, greener, safer, smarter and more equitable through greener transportation and clean energy. (@Aminorjourney@mastodon.transportevolved.com is my work account).

(See https://youtu.be/FBtJaqu1UE4 for that origin story)

I'm a total #Nerd, and I enjoy #cycling, RetroComputing, #OpenSource and much more. I'm married to the amazing @amerikate, and I love to #Garden. I have #Chickens, #Dogs, want #Goats, and I'm sometimes found at your local #Comicon or #Furcon dressed as @QueenieDeerhart, @ChimichangaFox, and others!